Link library: compassionate communities

Thinking of narratives for volunteer recruitment, I wonder how useful the concept of compassionate communities will be?

- Dying Matters: why we should develop compassionate communities?

- Compassionate communities: end-of-life care as everyone’s responsibility - article in QJM by the originator of compassionate communities, Professor Allan Kellehear

- Ambitions for Palliative and End of Life Care: A national framework for local action 2015-2020, by the National Palliative and End of Life Care Partnership of which the MND Association is a member. See in particular chapter 6 which is all about volunteers

- Blog post on Marie Curie about Prof Kellehear's ideas and its implications for their work.

Update: a couple of new links courtesy of Sue Muller

- Compassionate Inverclyde launches

- Bill's story - video explaning compassionate communities from Palliverse

Update The Second: similar issues from a slightly different angle - as a joint group of government officials and voluntary, community and social enterprise reps put forward an action plan for involving the sector in improving health, well-being and social care outcomes.  

See the VSCE Review website for more information.

Useful charity links 8 June

Why self-care and collective well-being are crucial to winning change (MobLab) 
City of Dreams: report from a Brazilian climate change campaign mobilising popular input and support (MobLab)
Hardy Merriman offers a useful theoretical model for defining a movement (International Centre on Nonviolent Conflict)
A blueprint for distributed organising (MobLab)
Free download report from Outrageous Impact on charity innovation

What's the Welsh for noticeboard?

It's hysbysfwrdd (thanks, Google Translate)

Because here's what will hopefully become a load of links about charities and campaigning in Wales as an aide-memoire.

The benefits of bilingual marketing by charities in Wales (Welsh Language Commissioner)

The Welsh language and volunteering (same)

A whole load of top-line social services statistics 2014-2015

Summer campaigning links

Bit of a bias towards strategy and planning on this one, as that's where my head is to some extent at today.

Training resources on systems, power, leadership and campaigns from the New Economics Organisers Network.

Design thinking (read: campaign strategy resources) via Beth's blog and the Greenpeace Mobilisation Lab Campaign Accelerator model.

And bucketloads of more planning resources via the DIY Toolkit

Heroes Journey story-mapping ooojimy from the Dancing Fox

Jenny Ross from Bond on theories of change

Collaboration cards toolkit

Campaigning boardgame? Yes please!

8 top tips for planning a march/protest/equivalent event (Hatcher Group)

Article on non-linear planning in Nonprofit: Absolutely Fabulous which is particularly helpful on the catch 22 of data - you need data in order to commit resources to a project but you need the resources to get the data...

My boss Alice Fuller on how our organisation developed its local campaigning strategy (Prezi presentation)

The Powercube - a new way to understand power-relationships.

What does a globally connected, thriving, capacity-building ecosystem for modern advocacy look like? (Report from Greenpeace Mobilisation Lab)

Approaches to Co-creation (Joanna Levitt Cea/Jess Rimington, SSIR)

Civic engagement as a way of life (Kirsten Grimm/Emily Gardner, SSIR)

Huge list of UK politics datasets

Asset mapping - using community's strengths to foster social networks (National Voices)

Presentation from Chris Rose on Why Campaigning Matters which is also a lucid exposition on the Rosean model of campaigning with full speaker's notes.

Hahrie Han bonanza! Full video of talk on 'Organising or mobilising to build power'  plus reflections from Jim Coe, Natasha Adams and Tom Baker.

And it's a bit meta, but here's a link to more summer reading links from Tom Baker at the Thoughtful Campaigner.

Spring into action [PUN KLAXON]

With thanks to my colleagues and the E-campaigning forum, I'm just scrap-booking some interesting links and resources here to create an impromptu reading list.

Unless indicated otherwise, linking does not indicate support, endorsement or the adoption of a resource as my philosophy of living. :)

Community organising

Betsy Hoover's TED talk on community organising

Change Agency guide to community organising

Unlocking Networks - a resource for developing and getting the most from peer-to-peer networks.

Directed network campaigns

An interesting report from NetChange about balancing central direction and bottom-up participation in campaigning.

E-mail activism

Free report from More Onion about how you can make your e-mail activism aimed at MP's and other decision-makers as effective as possible.

More More Onion reporting: supporter journeys and how to automate them

And a contrasting voice about the limits of e-activism.

Mobilisation Lab archive

Where all their regular updates on campaign innovation can be found.

Facilitation resource banks, hints and tips

Training For Change
350.org
Conscious Collaboration
Seeds For Change
Fabriders
Radical Think Tank

The long view

Friends of the Earth look at lessons from campaigns throughout history. A nice companion piece to this is an ACEVO report making the case for charity campaigning in the here and now.

They call him The Ponderer

Tom Baker is The Thoughtful Campaigner (see for example his thoughts on leadership in campaigns or on campaigning in coalition)

48 Campaign Strategies? So close to Paul Simon, but not quite 

Thanks, Chris Rose

Or: More Onion on unconventional tactics.

Stories and listening

Great article on Open Democracy by Simon Hodges about respectful relationships being a key criterion for persuasion. See also Outrageous Impact on a similar topic.

Teamwork and coalitions

Creative coalitions: a handbook for change
How Google Docs became a key tool for social justice

Old school

Common Cause report on value-led campaigning

Health-geekery March 2017

YOU WANTED THE LINKS! AND YOU GOT THE LINKS!

YOU WANTED THE LINKS! AND YOU GOT THE LINKS!

Or maybe you didn't, but in any case (with apologies to the Utah Saints) here's the latest list of health and social care links I compile on an occasional basis. 

As ever, the inclusion of a link doesn't mean agreement, just that it's made me go hmm (with further apologies to C and C Music Factory).

MND

MND Association new audit tool for health and social care services based on the NICE guideline launches.

Neurology

New report from Neurological Alliance based on patient survey finds services to diagnose, treat and provide on-going care are failing patients across the spectrum of neurological disorders.

Budget 2017

National Voices response.

Care Quality Commission

The CQC want to hear about your experiences of poor health and social care - also some useful information about complaining to a service and whistleblowing here too (via National Voices).

Care firms

BBC investigation finds that lack of money is prompting firms to end their care contracts with councils.

And the case for regulating homecare, courtesy of the Guardian.

Continuing Healthcare

Threats to CHC in Leicestershire and the threat of reinstitutionalisation (via MND Association).

Wheelchairs

Report on delays in wheelchair provision - quotes from Muscular Dystrophy UK and Wheelchair Alliance.

Northern Ireland election and coalition-wrangling special

Worries for charity sector funding in Northern Ireland in the absence of a 2017/18 budget due to election limbo (NICVA).

A handy list of new MLA's (NICVA again).

Analysis of election by Stratagem consultants

Video about Northern Ireland's GP crisis.

Local government nerdery in Wales

Want to read the Welsh Government's consultation document on local government, including its positions on joint working with health, council mergers etc, Thought so.

Devo Manc 

Progress report from The Health Foundation.

King's Fund trifecta

Quarterly NHS monitoring report.
The role of housing in Sustainability and Transformation Plans.
Elective waiting times target may not be reached for first time this year.  

Beds and delayed transfers of care

Good summary report from the Nuffield Trust with charts
And... as a complement, bed data from the BMA for each part of the UK

New palliative care awareness-raising campaign

Know About Me (Dying Matters)

Brexit and health

Record numbers of EU nurses quit NHS (Grauniad)

Research

Good summary here of Project AMBRoSIA on the MND Association's Research blog - the Association's biggest ever research project to date.

Elderly

Did you know more than 1.2 million older people are chronically lonely? Lovely campaign from the Jo Cox Commission on Loneliness running till mid-April. 

Teh datas

Call for a Health Data Lab to improve outcomes (NPC, backed by various charities including the MND Association).

Health Inequalities

Did you know Coventry was a Marmot City? If you think it has something to do with small furry animals, read on and be corrected (RCN Community Health Nursing Journal).

And finally...a giant spreadsheet of increased payments for adult social care from the 2017 Budget 

Just the figures, but if anyone notices anything interesting please share.

Health-geekery February 2017

I can't always get the health and social care links I want, but sometimes if I try repeatedly, I can get the health and social care links that I need.

As ever, inclusion in the list doesn't signify agreement, merely that I've found something to be interesting.

NHS

Belatedly, here's a series of essays hosted by the Kings' Fund imagining What If scenarios for the future of the NHS.

Even further back into the past, here's a very handy briefing by the Neurological Alliance on issues affecting neurology services from April last year.

Returning to the present, things do seem to have gone (temporarily no doubt) quiet on sustainability and transformation plans in the English NHS. However, Health Campaigns Together have produced some activist resources in the meantime, which may be useful whether you agree with their take on STP's or not.

Social care

New research from Scope finds that fewer than one in five people with disabilities (18 per cent) get the right social care, which [editorial voice intruding] is frankly gobsmacking.

Most councils unconvinced that increasing social care precept to 3% will resolve care crisis (ITV)

Local services by local people

New report from Locality calls for locally-commissioned and delivered public services which would provide "substantially better outcomes and value than standardised, one-size-fits-all services."

Transport

Changes to staffing on Southern Trains risks affecting accessible transport for people with disabilities. (Guardian)

Northern Ireland

Scope NI interview with NICVA Chair Seamus McAleavey has some interesting comments on health and health reform in light on renewed political instability.

Wales

News from the Wales Rare Disease Implementation Group as Rare Disease Day approaches on 28 February.

And a link to Wales' Digital Health Strategy, just because.

It's that man again...

Theresa May doesn't rule health out of any trade deal agreed with the US (Independent)
Caroline Molloy of Our NHS fires back

Resources

Presentations and related resources from National Voices annual conference.

And finally

An American patient in London - comedian Rob Delaney talks about his contrasting experiences of UK and US healthcare.

5 Links and a Picture - Sunday 1 July

Fake meat: is science fiction on the verge of becoming fact (Guardian Friday 22)

There is a Birmingham Metal Festival. I am eyeing up Infernalfest (22 September) with cautious interest.

Jonathan Coulton on The Decline of Scarcity (via @onlystephan)

"We should have sent the poets" - as much Rio+20 analysis as I can stand to read out of work, courtesy of The Guardian.

Any And All records - Dada attempt to sign everyone so that there will be no more unsigned artists in the world. We like.

And .... rare sighting of Yorkshire Minisaurus in its natural moorland habitat

This week's links - deconstructing Limp Bizkit and Download

Stop. Being. Tits - awesome article from @Eve_Barlow about depressing, rather coercive culture of boob-flashing at Download. 

"I’m not going to paint a picture of rapey tragedy - some of the girls were up for it (if you consider Lisbeth Salander in The Girl With A Dragon Tattoo up for it) but many looked hesitant, almost reluctant and caved into flasherdom at the very last second."

It's good to know someone else - with a considerably bigger readership than me - is flagging up that while metal may be awesome it maybe needs to resit feminism 101 at some point.

And more Download, with a review by Bryce (AKA @Wreckferretzero) parts one and two. 

"On Kyuss: Song. Silence (to get their breath back & drink water). Song. Silence. Song. etc... He did say thank you just as he left the stage. That was it."

 

And finally Richard Warrell (AKA @TheRamblingElf) deconstructs nu-metal through a highly enjoyable academic analysis of Break Stuff by Limp Bizkit

"Instead of offering a full-fledged alternative culture for audiences to immerse themselves in, Limp Bizkit’s nu-metal sound left its ideological definition open and vague, defining itself only as being in opposition to many mainstream, conformist ideals, but not offering any alternative approach."

Somewhere right now, Fred Durst is stroking his chin in ponder-satisfaction.